Health

Raising children with leukodystrophy means finding the positives in every single day

Posted on: Tue 8 Oct 2019

Nine year old twin boys, Ethan and Oliver Hosking have a rare strain of Leukodystrophy, a disease that effects the central nervous system and has no cure.

When parents Mark and Jasna received the news that their boys had this disease, and wouldn’t survive beyond their teens, they chose to see the positives and value every day they shared together.

Leukodystrophy Australia provides ongoing support and advocacy for individuals and families affected by this rare disease, but the battle to raise funds and promote the cause is another story…

 

Produced by: Scott Parslow

Featured in Story:

Parents: Mark and Jasna Hosking

Bronwyn Byrne, Office Manager, Leukodystrophy Australia

John Olsen OAM

Image supplied by Scott Parslow

Packed Lunch

Other stories